Direct-to-Consumer (DTC) genetic tests are becoming increasingly prevalent, emerging as a widely-used health-assessment instrument. Several shortcomings are typically associated with these tests, the most prominent of which is the absence of adequate genetic counseling. A research recently conducted at the Genetic Policy & Bioethics Unit has examined the multiple ethical, legal and practical concerns raised by the use of DTC genetic tests, such as: genetic testing of minors; non-consensual genetic testing; misleading consumers; the right not to know; DTC genetic testing services and Internet jurisdiction, etc. The conclusions of this research support specific harmonized regulation of such tests, joint with public guidance for educated consumption of DTC genetic tests. |